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From Cancer Patient to Cancer Survivor: Lost in Transition

Released:
November 3, 2005
Type:
Consensus Report
Topic(s):
Diseases, Quality and Patient Safety
Activity:
Cancer Survivorship: Improving Care and Quality of Life
Board(s):
National Cancer Policy Board

In the United States, half of all men and one-third of all women will develop cancer in their lifetimes. Advances in the detection and treatment of cancer, combined with an aging population, mean greater numbers of cancer survivors in the near future.

Despite the increase in survivors, however, primary care physicians and other health care providers often are not extremely familiar with the consequences of cancer, and seldom receive explicit guidance from oncologists. Furthermore, the lack of clear evidence for what constitutes best practices in caring for patients with a history of cancer contributes to wide variation in care.

Citing shortfalls in the care currently provided to the country's 10 million cancer survivors, From Cancer Patient to Cancer Survivor: Lost in Transition recommends that each cancer patient receive a "survivorship care plan." Such plans should summarize information critical to the individual's long-term care, such as the cancer diagnosis, treatment, and potential consequences; the timing and content of follow-up visits; tips on maintaining a healthy lifestyle and preventing recurrent or new cancers; legal rights affecting employment and insurance; and the availability of psychological and support services.

To ensure the best possible outcomes for cancer survivors, the committee aims in this report to:

  1. Raise awareness of the medical, functional, and psychosocial consequences of cancer and its treatment.
  2. Define quality health care for cancer survivors and identify strategies to achieve it.
  3. Improve the quality of life of cancer survivors through policies to ensure their access to psychosocial services, fair employment practices, and health insurance.

The committee's findings and recommendations in this report are directed to cancer patients and their advocates, health care providers and their leadership, health insurers and plans, employers, research sponsors, and the public and their elected representatives.

Report at a Glance

Fact Sheet: Cancer Survivorship Care Planning (PDF)
Fact Sheet: Cancer Survivorship Facts and Figures (PDF)

Fact Sheet: Cancer Survivorship Glossary (PDF)
Fact Sheet: Cancer Survivorship Recommendations (PDF)

Fact Sheet: Employment and Health Insurance Concerns (PDF)
Fact Sheet: From Cancer Patient to Cancer Survivor. Educating Cancer Health Care Professionals (PDF)

Other Reports by this Activity

  • Childhood Cancer Survivorship: Improving Care and Quality of Life Childhood cancer survivors who experience late effects as a result of their disease, its treatment, or both, are the focus of this new report, Childhood Cancer Survivorship: Improving Care and Quality of Life, which outlines a comprehensive policy agenda to improve the long-term outlook for this growing population now exceeding 270,000 Americans.
    Released: August 21, 2003

Previous Meeting for this Activity

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