Workshop Goals:

1) To understand the current status of genetic and genomic service delivery
2) To explore how needs will change as genomic innovation progresses
3) To examine what types of alternative practice models will be needed

8:30 Welcome and Introductions

Wylie Burke
Chair, Roundtable on Translating Genomic-Based Research for Health
University of Washington

8:45 Session 1: Current status of genetic service delivery

Debra Lochner-Doyle
Washington State Department of Health

9:05 Session 2: The strengths and challenges of the current system

Disparities and access
Alexandra Shields
Harvard / MGH Center on Genomics, Vulnerable Populations and Health Disparities

Patient education and communication
Vivian Ota Wang
Rockville, MD

Educational pipeline and workforce
Cathy Wicklund
National Society of Genetic Counselors

10:05 Discussion

10:30 Break

10:45 Session 3: New Models for Service Delivery

Heather Shappell
Informed Medical Decisions

Elissa Levin
Navigenics

Cynthia Prows
Cincinnati Children’s Hospital

11:30 Discussion     

12:15 Lunch

1:15 Session 4: Vision of the Future

Wylie Burke
University of Washington

1:45 Discussion

2:30 Break

2:45 Session 5: Brainstorming on A Service Delivery Model for the Future

Sharon Kardia, University of Michigan, Moderator
Frederick Chen, University of Washington
Cait DesRoches, Institute for Health Policy, Massachusetts General
Bruce Korf, American College of Medical Genetics
Debra Lochner-Doyle, Washington State Dept. of Health
Alexandra Shields, Harvard / MGH Center on Genomics, Vulnerable Populations and Health Disparities
Sharon Terry, Genetic Alliance
Vivian Ota Wang, Rockville, MD
Cathy Wicklund, National Society of Genetic Counselors

4:00 Discussion

5:00 Summing Up: Lessons Learned

Wylie Burke
University of Washington

5:30 Workshop Adjourns