Public Workshop

Innovations in Service Delivery in the Age of Genomics

 July 28, 2008

 Keck Building
Room 100
500 Fifth St., NW
Washington, DC 20001

 Workshop Goals:
1) To understand the current status of genetic and genomic service delivery
2) To explore how needs will change as genomic innovation progresses
3) To examine what types of alternative practice models will be needed

8:30                   Welcome and Introductions
                               Wylie Burke
                               Chair, Roundtable on Translating Genomic-Based Research for Health
                               University of Washington

 8:45                Session 1: Current status of genetic service delivery
                              Debra Lochner-Doyle, Washington State Dept. of Health (slides)

 9:05                Session 2: The strengths and challenges of the current system

                       Disparities and access:  Alexandra Shields, Harvard / MGH Center on Genomics, Vulnerable Populations and Health Disparities
                        Patient education and communication: Vivian Ota Wang, Rockville, MD
                        Educational pipeline and workforce:  Cathy Wicklund, National Society of Genetic Counselors (slides)

10:05                Discussion

 10:30                Break

 10:45                Session 3: New Models for Service Delivery
                           Heather Shappell, Informed Medical Decisions (slides)
                           Elissa Levin, Navigenics 
                           Cynthia Prows, Cincinnati Children’s Hospital (slides)

11:30              Discussion     

 12:15              Lunch

 1:15 p.m.        Session 4: Vision of the Future
                              Wylie Burke, University of Washington (slides)

 1:45 p.m.        Discussion

 2:30 p.m.        Break

 2:45 p.m.        Session 5: Brainstorming on A Service Delivery Model for the Future
                              Sharon Kardia, University of Michigan, Moderator
                  Frederick Chen, University of Washington
                  Cait DesRoches, Institute for Health Policy, Massachusetts General
                  Bruce Korf, American College of Medical Genetics
                  Debra Lochner-Doyle, Washington State Dept. of Health
                  Alexandra Shields, Harvard / MGH Center on Genomics, Vulnerable Populations and Health Disparities
                  Sharon Terry, Genetic Alliance
                  Vivian Ota Wang, Rockville, MD
                  Cathy Wicklund, National Society of Genetic Counselors

4:00 p.m.        Discussion

 5:00 p.m.        Summing Up: Lessons Learned 
                              Wylie Burke, University of Washington

 5:30 p.m.        Workshop Adjourns