Roundtable on Translating Genomic-Based Research for Health
Board on Health Sciences Policy

Wednesday, July 11, 2007
Meeting #1
Agenda

Keck Building, Room 100
500 Fifth St., NW
Washington, DC 20001

SESSION I: WELCOME AND INTRODUCTIONS
  
9:00 a.m. Welcome and Introductions

WYLIE BURKE
Roundtable Chair
Professor and Chair, Department of Medical History and Ethics
University of Washington

LYLA HERNANDEZ
Director
Roundtable on Translating Genomic-Based Research for Health

9:15 a.m. The Role Roundtables Play in IOM Activities
SUSANNE STOIBER
Executive Officer
Institute of Medicine

9:45 a.m. Roundtable Members Introductions, Interests, and Objectives
We would like to use this as an opportunity for each member of the Roundtable to briefly (< 5 minutes) introduce themselves, including a brief description of:

• Your primary interests related to this Roundtable
• Your objectives in participating in the Roundtable
• Any concerns or suggestions

11:00 a.m. BREAK

SESSION II: WHAT IS A ROUNDTABLE?  WHAT DOES IT DO?

11:15 a.m. Overview and General Description
• What is the purpose of a Roundtable?
• What can it do and not do?
• What other IOM Roundtables exist and what have they done?

ANDREW POPE
Director
IOM Board on Health Sciences Policy

11:30 a.m. Lessons Learned from other IOM Forums and Roundtables
• What activities have other Roundtables undertaken?
• What are some future planned activities?
• What have been some of the stumbling blocks and how were they overcome?

ROBERT GIFFIN
Director
Forum on Drug Discovery, Development and Translation

BRUCE ALTEVOGT
Director
Roundtable on Neuroscience and Nervous System Disorders

12:00 p.m. Discussion
WYLIE BURKE
Roundtable Chair

SESSION III: SOME POTENTIAL TOPICS

1:30 p.m. Some Issues in Personalized Medicine (see slides)
GEOFFREY GINSBURG
Director
Duke Center for Genomic Medicine

2:00 p.m. Obstacles and Opportunities for Data Sharing in Genome-Wide Association Studies: A Summary of a Recent Information Gathering Session (see slides)
LISA BARCELLOS
Assistant Professor of Epidemiology
UC Berkeley School of Public Health

2:30 p.m. Discussion
WYLIE BURKE
Roundtable Chair

3:00 p.m. BREAK

3:15 p.m. Brainstorming Session
• What are the issues the Roundtable should address

5:00 p.m. ADJOURN

Thursday, July 12
Keck Building, Room 100

SESSION IV: PLANNING THE FUTURE OF THE ROUNDTABLE

8:30 a.m. Setting Priorities
• What are the top 3 to 4 priority areas the Roundtable would like to establish?
(Establishing the top priorities will define the Roundtable’s objectives, and thus, future activities.)

9:30 a.m. Begin discussion of priorities
How should each priority be addressed?

• Workshop?
  o Who should be on the planning committee?
  o What might the major topics be?
• Commissioned paper?
  o Who are possible writers?
  o Who from the Roundtable could help define the statement of task for the paper?
• Smaller “private” meetings
  o Who should be involved?
  

10:15 a.m. BREAK

10:30 a.m. Continue discussion of how each priority should be addressed

11:15 a.m.  Next Steps 
• Next steps for future Roundtable activities
• Establishing working groups, if appropriate

12:00 p.m. ADJOURN