Agenda
Institute of Medicine
Committee on Health Research and the Privacy of Health Information: the HIPAA Privacy Rule

The Keck Center of the National Academies
500 5th Street, NW
Keck 201
Washington, D.C. 20001
June 14 and 15, 2007

8:00 am CLOSED MEETING
Thursday, June 14, 2007
Continental Breakfast

8:30 am Welcome, Opening Remarks, Bias and
Conflict of Interest Discussion
Lawrence Gostin (Committee Chair)
Susanne Stoiber, IOM Executive Officer

10:00 am OPEN MEETING
Break

10:15 am Presentation from the DHHS Office
for Civil Rights
Christina Heide, Senior Health
Information Privacy Policy Specialist
Office for Civil Rights

Christina Heide's Powerpoint Presentation

10:45 am Presentations from Sponsors
NIH, NCI
Lana Skirboll, Director
Office of Science Policy, NIH,
Ann O'Mara, NCI, CCOP Program Director,
NCI Researcher Perspectives on the
Privacy Rule

Lana Skirboll's Powerpoint Presentation
Ann O'Mara's Powerpoint Presentation

11:30 am Committee Functions, Report Review,
Statement of Task Discussion
Lawrence Gostin and Committee

12:00 noon Lunch

12:45 am Overview of the Privacy Rule and Health Research
Joy Pritts, Founding Director, Georgetown University
Center on Medical Record Rights and Privacy
Georgetown Health Policy Institute

Joy Pritt's Powerpoint Presentation

2:00 pm Break

2:15 pm Presentations on New Evidence Projects
Roberta Ness, University of Pittsburgh,
Sarah Greene, HMO Research Network,
Richard Schilsky, American Society of
Clinical Oncology, Penelope Solis,
American Heart Association, Holly Howe,
NAACCR

Roberta Ness's Powerpoint Presentation
Richard Schilsky's Powerpoint Presentation
Penelope Solis's Powerpoint Presentation
Holly Howe's Powerpoint Presentation

3:45 pm Comments from Guests
Elizabeth Mayer-Davis, Carolina Distinguished
Professor and Director, Center for Research in
Nutrition and Health Disparities, Arnold School of
Public Health, University of South Carolina-
Research in Diabetes,
Others, TBD

Elizabeth Mayer-Davis's Powerpoint Presentation

4:30 pm Discussion of Draft Background Material and
Annotated Bibliography
Lawrence Gostin and Committee

5:00 pm Adjourn

6:30 pm Commmittee Dinner

8:30 am OPEN MEETING
June 15, 2007
Continental Breakfast

9:00 am Discussion of Report Outline, Workshop,
and Study Plans
Lawrence Gostin and Committee

10:15 am Break

10:30 am Discussion of Potential Recommendation
Categories and Previous Recommendations
(AAMC, NCVHS, and SACHRP)

11:30 am Scheduling, Suggestions for Invited Speakers
and a Second Background Paper, Other Business,
Concluding Remarks
Lawrence Gostin

12:00 noon Adjourn and Lunch