Meeting Agenda

Agenda: Meeting 3. Committee on Health Research and the Privacy of Health Information: The HIPAA Privacy Rule

Thursday, February 14, 2008

8:30 AM         Welcome and Opening Remarks

                        Lawrence Gostin (Committee Chair)

8:45 AM         Privacy and Protecting the Public’s Health: Key Issues in Practice and Research

                        James Hodge
                        Executive Director, Center for Law and the Public's Health
                        Johns Hopkins Bloomberg School of Public Health

9:15 AM         Challenges with Biorepositories, Databases, and Future Research

                        Kristin Rosati
                        Coppersmith Gordon Schermer & Brockelman PLC, Phoenix, AZ

9:45 AM         Privacy and Autonomy in Health Research

                        Fred H. Cate
                        Distinguished Professor and Director
                        Center for Applied Cybersecurity Research
                        Indiana University

10:15 AM       Break

10:30 AM       Surveys of the HMORN researchers and IRB administrators

                        Sarah Greene
                        Group Health Center for Health Studies

11:15 AM       Academy Health Survey Results

                        David Helms
                        President and CEO, AcademyHealth

11:45 AM       ASCO survey

                        Elizabeth Goss
                        ASCO Policy Counsel

12:15 PM       Adjourn Open Session

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