Agenda: Meeting 1. Committee on Health Research and the Privacy of Health Information: The HIPAA Privacy Rule
Thursday, June 14, 2007
8:30 am Welcome, Opening Remarks, Bias and Conflict of Interest Discussion
Lawrence Gostin (Committee Chair)
Susanne Stoiber, IOM Executive Officer
10:00 am Break
10:15 am Presentation from the DHHS Office for Civil Rights
Christina Heide, Senior Health
Information Privacy Policy Specialist
Office for Civil Rights
10:45 am Presentations from Sponsors (NIH, NCI)
Lana Skirboll, Director
Office of Science Policy, NIH
Ann O'Mara, NCI, CCOP Program Director,
NCI Researcher Perspectives on the Privacy Rule
11:30 am Committee Functions, Report Review, Statement of Task Discussion
Lawrence Gostin and Committee
12:00 noon Lunch
12:45 am Overview of the Privacy Rule and Health Research
Joy Pritts, Founding Director, Georgetown University
Center on Medical Record Rights and Privacy
Georgetown Health Policy Institute
2:00 pm Break
2:15 pm Presentations on New Evidence Projects
Roberta Ness, University of Pittsburgh,
Sarah Greene, HMO Research Network,
Richard Schilsky, American Society of Clinical Oncology
Penelope Solis, American Heart Association
Holly Howe, NAACCR
3:45 pm Comments from Guests
Elizabeth Mayer-Davis
Carolina Distinguished Professor
Director, Center for Research in Nutrition and Health Disparities
Arnold School of Public Health, University of South Carolina-Research in Diabetes
Others, TBD
4:30 pm Discussion of Draft Background Material and Annotated Bibliography
Lawrence Gostin and Committee
5:00 pm Adjourn
Friday, June 15, 2007
9:00 am Discussion of Report Outline, Workshop, and Study Plans
Lawrence Gostin and Committee
10:15 am Break
10:30 am Discussion of Potential Recommendation Categories and Previous Recommendations (AAMC, NCVHS, and SACHRP)
11:30 am Scheduling, Suggestions for Invited Speakers and a Second Background Paper, Other Business, Concluding Remarks
Lawrence Gostin
12:00 noon Adjourn
Back to Meeting