Agenda: Meeting 3
Wednesday, July 9, 2003
8:45 Welcome
Richard E. Behrman, M.D., Chair, Committee on Clinical Research Involving Children
8:55 - 9:35 Panel 1
American Academy of Pediatrics
David J. Schonfeld, M.D.
Member, AAP Committee on Pediatric Research
Yale University School of Medicine
Society for Pediatric Research / American Pediatric Society
Christine A. Gleason, M.D.
University of Washington, Seattle
Association of Medical School Pediatric Department Chairs
George J. Dover, M.D.
Johns Hopkins University School of Medicine
9:35 - 10:15 Panel 2
Children's Oncology Group
Gregory H. Reaman, M.D.
Chairman, COG
The George Washington University and Children's National Medical Center
The Pediatric AIDS Clinical Trials Group
Stephen A. Spector, M.D.
PACTG Group Chair, Executive Committee
University of California, San Diego School of Medicine
Allergy & Asthma Network, Mothers of Asthmatics
Martha White, M.D.
Board Member
Nancy Sander
President and Founder
10:15 - 10:50 Break
10:50 - 11:20 Panel 3
Children's Clinical Research Institute, The Children's Hospital of Philadelphia
Mark S. Schreiner, M.D.
Senior Medical Director
American Society of Transplantation
William E. Harmon, M.D.
Immediate Past President, American Society of Transplantation
Director of the Division of Nephrology, Children's Hospital Boston
Chair, North American Pediatric Renal Transplant Cooperative Study
11:20 - 11:50 Panel 4
Public Citizen's Health Research Group
Peter Lurie, M.D., M.P.H.
Deputy Director
Citizens for Responsible Care and Research
Paul Gelsinger
Vice President
11:50 - 1:00 Break
1:00 - 1:40 Panel 5
Genetic Alliance
Mary Ann Wilson
Consumer Staff Representative
Children and Adults with Attention-Deficit/Hyperactivity Disorder
Phyllis Anne Teeter Ellison, Ed.D.
Immediate Past Chair, CHADD Professional Advisory Board
Chair, CHADD Editorial Advisory Board
University of Wisconsin, Milwaukee
Cystic Fibrosis Foundation
Suzanne R. Pattee, J.D.
Vice President of Public Policy & Patient Affairs
1:40 - 2:20 Panel 6
Applied Research Ethics National Association/Public Responsibility in Medicine & Research
Leonard H. Glantz, J.D.
Board Chairman, PRIM&R
Boston University School of Public Health
Association for the Accreditation of Human Research Protection Programs, Inc.
Marjorie A. Speers, Ph.D.
Executive Director
Partnership for Human Research Protection
Jessica Briefer French
Assistant Vice President
2:20 - 2:40 Break
2:40 - 3:50 Issues in Research in Pediatric Psychology and Psychiatry
Anthony Spirito, Ph.D.
Brown University Medical School
Philip C. Kendall, Ph.D., ABPP
Temple University
Laurence L. Greenhill, M.D.
New York State Psychiatric Institute
3:50 - 5:00 Research on Children's Comprehension of Research Participation
Eric D. Kodish, M.D.
Rainbow Babies and Children's Hospital
Myra Bluebond-Langner, Ph.D.
Rutgers University, Camden, New Jersey
5:00 Public Comment
Adjourn
Friday, July 11, 2009
10:00 - 12:15 Meeting with Parents and Research Participants
Parents:
Maureen and Joseph Lilly
Joan Lippincott
Andrell Vaughn
Lise Yasui
Research Participants:
Carolyn Brokowski
Sarah Lippincott
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